gwyn_bywyd: Photo of a yellow orchid. (Default)
[personal profile] gwyn_bywyd
I think I'm fighting off a cold. My family has a children's picture book called "I don't feel well" that is read to the person who is not feeling well. Bear in mind the youngest in the family (apart from "furry grand-children" cats and a ferret) just turned 21! My mum tracked down copies via ebay for all of us, so now one can follow along as it is read over the phone. It is enormously comforting in a peculiar way and makes me reflect on the value of tradition, communal as well as just family ones.
Had a conversation (via typing) with one of my very best friends ... who was very surprised to learn people die from cfs. I've been sick 4 1/2 years now, and it seems strange to be having this conversation, especially since one of my biggest fears during the last 12 months has been the catch 22 of if I really need to be admitted to hospital I will be (by definition) too ill to get myself there, and probably too ill to be able to communicate this to anyone and worrying at what point I should pre-emptively make that call. Just goes to show how little is generally known about what having cfs really means to a person. As I was saying to someone today, it says a lot about how the unknown nature of the illness affects me that I cried tears of relief on reading the article that suggested that cfs might be a retrovirus (if this doesn't mean much to you - the reason AIDS is so hard to treat is because it is a retrovirus.) At this stage I wouldn't have the first qualm about offering myself as a test subject in trials of antiretrovirals, unfortunately I'm too far away from major research centres.
But there is some light at the end of the tunnel for me at the moment, I see my family the day after tomorrow! I just can't wait!
Anonymous( )Anonymous This account has disabled anonymous posting.
OpenID( )OpenID You can comment on this post while signed in with an account from many other sites, once you have confirmed your email address. Sign in using OpenID.
Account name:
If you don't have an account you can create one now.
HTML doesn't work in the subject.


Notice: This account is set to log the IP addresses of everyone who comments.
Links will be displayed as unclickable URLs to help prevent spam.


gwyn_bywyd: Photo of a yellow orchid. (Default)

May 2010

91011 12131415
23242526 272829

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Powered by Dreamwidth Studios